March 12, 2012

3:21 Day 12

We interrupt your daily World Down Syndrome Day posting schedule to whine about my life a little. We'll get back to learning more about living with a child with DS tomorrow.

This morning, we had our oldest son, Luke, evaluated by our local Early Intervention program. Three nice ladies came by and tested him on a variety of skills, from fine/gross motor skills to speech and social skills. As we guessed, he passed all areas of development with flying colors, except language. And even in that category, he was age-appropriate for receptive language...meaning, he understands about 99% of what you tell him. However, he is lagging at least 6 months behind his peers in his expressive language...meaning, he can't really talk to you about what he wants, what he sees, or what he is frustrated about.

This is not unexpected news for us, but it is still sobering. While today was mainly focused on getting him evaluated, we won't really know what it will take to help him catch up until we start the weekly therapy sessions. I don't think this is going to be a huge deal in the grand scheme of Luke's life, but in the small picture of our day to day life, it is definitely a big deal in the here and now.

There are days when I feel I finally have a handle on what it means to be a mother of two kids. It's exhausting; demanding great patience, creativity, and humor. I know this now, and most days that is enough to help fuel me from breakfast to bed time. 

But learning that both my children will be in weekly therapy? 

Sometimes, I just wish we could catch a break.

Head over to NDSS and DSI to learn more about World Down Syndrome Day, March 21st.

1 comment:

  1. That's got to be overwhelming. Good thing is, Early Intervention really makes a difference for children, from all I've heard (a friend is an Early Intervention Specialist). Also, just think of if as all the more people to know and love your children, if you want to spin it to yourself that way when it all seems too much :)