October 25, 2011

Day 14

Day 14
So after crying all the way home last night, I was dreading returning to the hospital this morning. Travis called the night nurse when he got up and learned that Samuel had been paced throughout the night. This was disappointing, to say the least, and I had to drag myself away from my happy toddler to return to this room I am beginning to loathe.
When I walked into Sam's room, his heart rate was in the mid 60s and his pacemaker was unhooked again. Since I'd seen the team down in room 3, I assumed that they unhooked him before rounds and wanted to see what he would look like by the time they made it to our room. And I was right. He stuck around in the 60s the whole time they were in giving report, but they want him to ride this out. Even with his heart rate half of what it should be, he's still tolerating it very well. Good blood pressure and saturation levels. The pacemaker box is still right next to him on the bed, but he has remained unhooked all morning/afternoon. He looks and acts completely normal. (Add this to the list of things I completely don't understand.)
The plan remains that we are just going to wait and see. From what I hear from our nurses, the surgeon was ready to put him back on the schedule for a pacemaker, but our cardiologist disagrees. This is the same cardiologist that we liked so much in the clinic and who wanted Sam to have the surgery earlier to protect his lungs. So far, we've felt very comfortable with all the decisions he (and his colleagues) have made, so I guess we are going to stick with him for now. (Not that we seem to have any choice in the matter at this point...but it makes me feel better if I pretend we do.) I really don't want to have Samuel go through another surgery if we can help it, so I guess I have to be prepared to ride this roller coaster all the way to the end.
About 1 o'clock, after an entire morning of 60s heart rates, he started to have an irregular rhythm that was bouncing around. After 20 minutes or so of that, it settled into a nice steady rhythm of about 128 and doesn't show any heart block. It has remained that way for the last 2 hours.
I'm in that week postpartum where all my hair starts to fall out (weird pregnancy phenomenon)...I'm pretty sure it's all going to come back gray.
I guess I am just resigning myself to the fact that we are going to be here long term. I just keep telling myself to think about bringing home my sweet, healthy baby and not all the bills that will follow. Money is just money, right?

1 comment:

  1. I am not sure if you know me or not, but I am friends with Alison Browning and she is keeping me updated on Sam. I am praying for you all!